In order to receive information about your Personal Data, the purposes and the parties the Data is shared with, contact the Owner.
For more information and to understand your rights, you can also view the complete version of this privacy policy, by clicking the link at the bottom right of this page.
The Cure FSHD application (“the App, we, us or our”), being a data capture solution and clinical informatics platform, a secure, internet-based software platform, and related services (collectively, the “Services”) was developed alongside medical professionals, for medical professionals and patients. The App is compliant with the Australian Privacy Principles (“APP”) as contained within the Privacy Act 1988 (Cth) (“the Act”) when collecting, using, disclosing and managing your personal information.
We understand the importance of the doctor-patient relationship and the importance of keeping your personal information private. For the purposes of this Privacy Statement, the term ‘personal information’ has the meaning given to it in the Act. For the avoidance of doubt, personal information is information that identifies you as an individual, such as your name, postal address, email address, date of birth and telephone number, and includes health information (such as information or opinions about a person’s illness, injury or disability) (“Personal Information”).
This Privacy Statement describes our practices in connection with information that we collect through your use of the App through any website or device. By using the App, you agree to the terms and conditions of this Privacy Statement.
Health information is a part of the Personal Information that we collect and will be treated in accordance with this Privacy Statement. Health information that is provided to us or that we otherwise collect is subject to the additional terms and conditions in the “Health Information” section below, the terms of which will prevail and control if they are inconsistent with or contradictory to the remaining terms and conditions of this Privacy Statement.
Personal Information We Collect From Providers
If you are a doctor or other healthcare or medical provider (“Provider”), or an individual who is authorised by a Provider to access and use the Services (“Designee”), we collect Personal Information about you when the Provider subscribes to the Services as well as when you register to use the Services. The Personal Information about Providers and Designees that we collect includes, without limitation, the Provider’s and Designee’s name, specialty, email address, phone number, and business postal address.
Personal Information We Collect From Patients and Authorised Carers
If you are a patient of a Provider who has subscribed to the Services (“Patient”), we collect Personal Information about you when you register to use the Services and through you or your caregiver’s or legal guardian’s (“Authorised Carer”) use of the Services.
If you are an Authorised Carer, we collect Personal Information about you, including, without limitation, your name, email address, phone number and your relationship to the Patient. When communicating with the Provider in using the Services, the Patient, Authorised Carer, Provider and its Designees may disclose Personal Information about the Patient, which may include health information. We do not collect health information about an Authorised Carer.
How We Use Personal Information
We may use Personal Information, as follows:
to enable you to access and use the Services.
- to respond to your inquiries, to send you important information regarding the Services, and changes to our terms and conditions, policies and/or other administrative information.
- for our business purposes, such as data analysis, audits, developing new products, and enhancing and improving our site and the Services.
as we believe to be necessary or appropriate:
(a) under applicable law, including laws outside your state or country of residence;
(b) to comply with legal process;
(c) to respond to requests from public and government authorities including public and government authorities outside your state or country of residence; or
(d) to enforce our terms and conditions.
How We Disclose Personal Information
We may disclose Personal Information, including health information as follows:
if you are a Patient, to your Provider, its Designees and Authorised Carer, without further authorisation for purposes of treatment, payment or operations; for other uses or disclosures permitted by law; or for purposes related to such uses or disclosures.
- if you are an Authorised Carer, to the Patient and his/her Provider and that Provider’s Designees.
- to our third-party service providers who provide services such as website hosting, data analysis, payment processing, order fulfillment, infrastructure provision, IT services, customer service, email delivery services, credit card processing, backup, auditing services and other similar services.
- as we believe to be necessary or appropriate:
(a) under applicable law, including laws outside your state or country of residence;
(b) to comply with legal process;
(c) to respond to requests from public and government authorities including public and government authorities outside your state or country of residence; or
(d) to enforce our terms and conditions.
SMS (Short Message Service) / Text Message Terms and Conditions
By providing your contact information, you provide clear and expressed consent to receive information via SMS/text message. Consent is not a requirement for purchasing the goods or services. You may opt-out by contacting us at any time. Messages are recurring. Message frequency varies.
We may use and/or disclose health information in the same manner as Personal Information, described above, except our use and disclosure of health information is further limited by law.
All uses or disclosures of health information shall require Patient authorisation or a valid authorisation on the Patient’s behalf, except: (1) uses or disclosures by or to the Patient; (2) uses or disclosures for treatment, payment or healthcare operations; (3) as part of any valid use or disclosure; or (4) in compliance with and pursuant to applicable law.
We may disclose health information for most other purposes only pursuant to the Patient’s valid authorisation, as follows: (1) for most uses and disclosures of psychotherapy notes; (2) for use or disclosure of health information for marketing purposes; (3) for disclosures that constitute a sale of health information; or (4) for other uses or disclosures that are not exempt from the authorisation requirement.
We may also use health information for our proper management and administration or to carry out our legal responsibilities.
Non-Personal Information We Collect
“Non-Personal Information” is any information that does not reveal your identity, and cannot be combined with other data to identify you, such as:
Browser information
Information collected through cookies, pixel tags and other technologies
Demographic information and other information provided by you
Aggregated information
We and our third-party service providers may collect Non-Personal Information in a variety of ways, including:
Through your browser: certain information is collected by most browsers, such as your media access control address, computer type (Windows or Macintosh), screen resolution, operating system version and internet browser type and version.
Using cookies: cookies allow a web server to transfer data to a computer for record keeping and other purposes. We use cookies and other technologies to, among other things, better serve you with more tailored information and facilitate your ongoing access to and use of the Services. We use two types of cookies, “session” cookies and “persistent” cookies. A session cookie is temporary and expires after you end a session and close your web browser. We use session cookies to help customise your experience as you use the Services and maintain your signed-on status as you navigate through the features of the Services. Persistent cookies remain on your hard drive after you have exited from our Services, until you erase them, or they expire. If you do not want information collected through the use of cookies, there is a simple procedure in most browsers that allows you to decline the use of cookies. To learn more about cookies, please visit http://www.allaboutcookies.org/.
Using pixel tags, web beacons, clear GIFs or other similar technologies: these may be used in connection with some site pages and HTML-formatted email messages to, among other things, track the actions of site users, email recipients, and compile statistics about site usage and response rates.
From you: information such as your location, as well as other information, such as your preferred means of receiving messages through the Services (e.g., emails or text messages), is collected when you voluntarily provide this information. Unless combined with Personal Information, this information does not personally identify you or any other user of the Service.
By aggregating information: aggregated personal information does not personally identify you or any other user of the Service (for example, we may use Personal Information to calculate the percentage of our users who have chosen to receive messages by text messaging).
How We Disclose and Use Non-Personal Information
Because Non-Personal Information does not personally identify you, we may use and disclose Non-Personal Information for any purpose whatsoever. In some instances, we may combine Non-Personal Information with Personal Information (such as combining your name with your geographical location). If we combine any Non-Personal Information with Personal Information, the combined information will be treated by us as Personal Information as long as it is combined.
Your IP Address is a number that is automatically assigned to the computer that you are using by your internet service provider (“IP Address”). An IP Address is identified and logged automatically in our server log files whenever a user uses the Services, along with the time of the visit and the page(s) that were visited. Collecting IP Addresses is standard practice on the internet and is done automatically by many web sites. We use IP Addresses for purposes such as calculating usage levels, helping diagnose server problems, and administering the Services. We may also use and disclose IP Addresses for all the purposes for which we use and disclose Personal Information. Please note that we treat IP Addresses, server log files and related information as Non-Personal Information, except where we are required to do otherwise under applicable law.
This Privacy Statement does not address, and we are not responsible for, the privacy, information or other practices of any third parties. The inclusion of a link within the Services does not imply endorsement of the linked site by us or by our affiliates.
How can you access or change your Personal Information?
If you would like to review, correct, update, delete or otherwise limit our use of your Personal Information that has been previously provided to us, you may contact us in accordance with the “Contacting Us” section below.
In your request, please make clear what information you would like to have changed, whether you would like to have your Personal Information deleted from our database or otherwise let us know what limitations you would like to put on our use of your Personal Information.
We will try to comply with your request as soon as reasonably practicable.
Please note that in order to comply with certain requests to limit the use of your Personal Information we may need to terminate your account with us and your ability to access and use the Services, and you agree that we will not be liable to you for such termination or for any refunds of prepaid fees paid by you.
Although we will use reasonable efforts to do so, you understand that it may not be technologically possible to remove from our systems every record of your Personal Information. The need to back up our systems to protect information from inadvertent loss means a copy of your Personal Information may exist in a non-erasable form that will be difficult or impossible for us to locate or remove.
We will retain your Personal Information for the period necessary to fulfill the purposes outlined in this Privacy Statement and our Terms of Service unless a longer retention period is required or allowed by law.
We may change this Privacy Statement. Please refer to the “LAST UPDATED” legend at the top of this page to see when this Privacy Statement was last revised. Any changes to this Privacy Statement will become effective when we post the revised Privacy Statement on the site, make it available through the Services, or otherwise notify you at the email address provided by you at the time you registered for the Services, whichever occurs earlier. Any change to this Privacy Statement will be effective for all information that we maintain, even information in existence before the change. Your use of the site and/or the App following these changes means that you accept the revised Privacy Statement.
If you have any questions about this Privacy Statement, please contact us by email at help@CureFSHD.com.au. Please note that email communications are not always secure; so please do not include sensitive information in your emails to us.
FSHD Global Research
PO Box A296
Sydney South NSW 1235
Sydney NSW 2000
Owner contact email: admin@fshdglobal.org